The Cancer in Young People in Canada/ Cancer Chez les Jeunes au Canada program (CYP-C / CCJC) is a collaborative effort between the C17 Council and the Public Health Agency of Canada (PHAC). The purpose of CYP-C / CCJC is to contribute to the control of cancer in children and adolescents in Canada by collaborating in the collection, analysis, interpretation and dissemination of Canadian population based surveillance data. This population-based study is carried out at the 17 Canadian pediatric hematology/oncology centres. Data is collected on diagnosis, treatment and short-term (5 year) outcome of children and adolescents less than 15 years of age.  For additional information, please see the PHAC website.

The Cancer in Young People in Canada report presents in-depth diagnostic, treatment, and outcome data on children under the age of 15 years diagnosed with cancer.

Le rapport Cancer chez les jeunes au Canada présente des données exhaustives sur le diagnostic, le traitement et les issues chez des enfants de moins de 15 ans ayant reçu un diagnostic de cancer.

CYP-C Data Use Applications

Individual level data and aggregate level data may be requested from the CYP-C dataset. Applications may be submitted at anytime to the C17 Surveillance Coordinator (see below) and will be considered in the order in which they are received. All proposals will be reviewed by the CYP-C Data Access, Use & Publications Committee. Once approved by CYP-C, applications must be approved by the Pediatric Oncology Group of Ontario (POGO) if they request data on Ontario patients. All applications must also receive approval from the PHAC Privacy Office.

pdf-icon.gif Application Instructions - PLEASE READ

pdf-icon.gif Data Abstraction Forms

pdf-icon.gif CYP-C Data Use and Publication Guidelines

Aggregate Data Requests

pdf-icon.gif Aggregate Data Request Form



Patient Level Data Requests

pdf-icon.gif Patient Level Data Request Form

pdf-icon.gif Appendix A - Data Elements

pdf-icon.gif Appendix B - Chemotherapy

*Forms can be completed electronically if you download them* 


If you have any questions, please contact:

Randy Barber
C17 Surveillance Coordinator, CYP-C

Approved Data Use Applications

1. "Mapping Children’s Cancer and Environmental Carcinogenic Emissions in Canada: An Interdisciplinary Spatio-temporal Data Mining Approach" - Dr. Alvaro Osornio-Vargas. Funding source: Cancer Research Society and Read for the Cure

2. "Trial participation in pediatric cancer in Canada: a population-based study"
- Dr. Lillian Sung & Dr. Jason Pole
a) Most children with cancer are not enrolled on a clinical trial in Canada

3. "Geographical variation in childhood leukemia in Canada" - Dr. Mahmoud Torabi, Dr. Sara Israels & Dr. Harminder Singh

4. "Cancer Outcomes in Canadian Indigenous Children" - Dr. Stacey Marjerrison, Dr. Jason Pole, Dr. Geoff Cuvelier, Dr. David Stammers, Ms. Ashley Turner, and Dr. Lillian Sung

5. "Allogeneic hematopoietic stem cell transplantation for children with relapsed and high risk acute leukemia: A population based study" - Dr. Tony Truong, Dr. Jason Pole, Dr. Donna Wall and Dr. Lillian Sung

6. "Epidemiology of thrombo-embolism in children with cancer: a population-based study" - Dr. Lillian Sung, Dr. Pelland-Marcotte, Dr. Jason Pole, Dr. Uma Athale, Dr. Ketan Kulkarni & Dr. Leonardo Brandao

Research Champion Webinars (2017)

The objective of this webinar series is to provide members of the Canadian pediatric cancer community a broad understanding of how to access and utilize the Cancer in Young People in Canada data for research purposes. This series will include an overview of how to (1) develop an appropriate research question, (2) complete the data access process and (3) perform basic data manipulation and analysis using SAS and Microsoft Access. The webinars will be delivered one to two times per month over the 2017 calendar year. We look forward to your participation!

CONFIRMED (2017; times are noon EST unless stated)
Data Analysis II (Nov 24, 12pm)

Data Manipulation in Access
Introduction to Cancer Coding Systems
Record Linkage
Bibliographic Software
Creating an Analysis Plan

1. pdf-icon.gif Developing a Research Question - L Sung

2. pdf-icon.gif Overview and Requesting Data - S Badour, E Martineau, R Barber    
    video.JPG [video]

3. pdf-icon.gif Power Literature Searching - E Uleryk    video.JPG [video] 
    pdf-icon.gif Power Search PubMed [reference materials]

4. pdf-icon.gif Using SAS to analyze CYP-C data: An introduction - J Pole    video.JPG [video]

5. pdf-icon.gif Using SAS to analyze CYP-C data: Advanced - J Pole    video.JPG [video]

6. pdf-icon.gif Grant Writing Tips and Tricks – L Rosella    video.JPG [video]

7. pdf-icon.gif SAS Procedures – J Pole    video.JPG [video]

8. pdf-icon.gif Data Cleaning – G Giuseppe   video.JPG [video]

9. pdf-icon.gif GIS for CYP-C Research - C Nielsen  video.JPG [video] 
    excel.png Test Data [reference materials]

10. pdf-icon.gif SIOP2017 Census Geography - J Pole  video.JPG [video]

11. pdf-icon.gif Data Analysis I - J Pole  video.JPG [video]   

Potential Publication Collaborations

1. Childhood cancer incidence in Canada: temporal, regional and deprivation-related patterns
2. Socioeconomic status and childhood cancer incidence
3. Association between socioeconomic characteristics and childhood cancer survival
4. Diagnostic and treatment intervals and childhood cancer survival: economic and distance dimensions
5. Incidence of relapse of childhood cancer (recurrence of the primary malignancy)
6. Health status/complications in survival of childhood cancer during 5 year follow-up
7. Subsequent malignancy rates of childhood cancer
8. Incidence and survival of childhood cancer in Canada**
9. Diagnostic and treatment intervals for pediatric cancer care in Canada
10. Completeness of case ascertainment of non-malignant CNS tumors in CYP-C
11. Access to care and survival of aboriginal children**
12. Spatial analysis of childhood cancer incidence**
13. Prognostic impact of demographic, histologic and therapeutic factors on childhood cancer survival in Canada
14. Childhood brain cancers: incidence and survival**
15. Health adjusted life expectancy (HALE) of childhood cancer
16. Obesity (BMI) and childhood cancer risk

**There are ongoing approved CYP-C projects in this area